I Have Crossed the Threshold...

...into overnight pain. Not bad, and I don't think I can feel it when I sleep, but definitely there. I woke up several times last night and could feel the pain (just a little) each time.

I am already hurting as badly as I do after PT, and I haven't done it yet today. I'm scared of exercising. Of course I'll do it anyway, though.

I miss "John", who's home for the weekend (we are having a long weekend in between trimesters), and "Elijah", a day student. I have a new friend, "Michael", whom I could probably email, but I don't feel as if I've known him long enough to trust him like that yet. In short, I feel alone today...and lonely.

I have, however, gotten active on the message boards of "butyoudontlooksick.com" again. It is a great comfort to be among others with chronic illnesses/conditions, even if only online.

Recognition

I was walking with a friend yesterday discussing RND, and he told me it sounded worse than cancer.

Medically, I do NOT agree with that statement at all.

That being said, in one way he was right: When people have cancer, they are treated as if they are sick and everyone understands. People with RND are often forgotten, ignored, or disbelieved.

It was nice to get some recognition from my friend as I fight this daily battle.

Moving Right Along

The RND is definitely starting to spread to my hands. I am hoping to stop that in its tracks with desensitization (rubbing with a towel).

Also, I will mostl likely see my doctor in Philadelphia sometime this month.

Better (?)

Today was a better day painwise, but I don't trust it. It was just too random, and it wasn't good enough to signify the end of anything. My feet were still in a lot of pain; the shooting pains I have been experiencing (mostly while exercising) the last few days were still there; and I think this *might* (emphasis on might) be spreading to my hands again. As planned, I will contact my doctor on Friday.

Just a quick update.

Prayers Please

There is a boy in my class at school who is in the ICU,very sick...prayers please.

Really Starting to Bug Me

This whole RND thing is really starting to bug me. I've been hurting easily all day and the pain burned like fire for a portion of it. I instinctively move gingerly, I lie on my bed more than I should, and it still hurts. I treadmill more than I want to, and it still hurts. When I wasn't resting, it kept getting worse; I started resting and it continues to get worse. To quote something I saw somewhere (it might have been a t-shirt): "Pain when I walk, and pain when I don't; pain when I stop, and pain when I won't." Pain, pain, pain. URRRGGH.

Worth Reposting...

http://www.youtube.com/watch?v=S1Qn5rus4Gg

Just to remind everyone of the type of pain I feel when it gets bad enough. I did treadmill today but by the time I got off I had shooting pains throughout my body...like sparklers.